Off Your Rocker Pottery is donating 25% of all sales now thru May 15th to the Hydrocephalus Association (HA)!
Meet Conor, he was diagnosed with hydrocephalus before he was born. Hydrocephalus is an abnormal accumulation of fluid on the brain. Conor had to under go brain surgery at just 6 weeks old to implant a shunt in order to drain this fluid. And this is just the beginning for Conor's journey with hydrocephalus.
Shunts have the highest failure rate of any implanted medical devise, an average of 50% of shunts fail within the first two years. What does this mean for Conor and the hundreds of thousands of children with hydrocephalus? More brain surgeries thru out their life.
Conor is now 7 and every year he has to see 6 different medical specialists to monitor his condition and the many other medical problems brought on by his condition. His shunt is like a ticking clock and his parents are always on high alert for when this clock will run out of batteries, when Conor's shut will fail. It is not a matter of if, it is a matter of when. The shunt Conor received at 6 weeks old is guaranteed to fail at some point. It will need to be replaced through out his life.
Hydrocephalus is as common as Down Syndrome, yet so many of us have never even heard of it. In return Hydrocephalus receives very little funding for research in order to find a cure. HA is the largest non-profit organization in the world dedicated just to hydrocephalus and finding a cure so children like Conor will not have to endure multiple brain surgeries and the many other complications associated with this condition.
Though many children are effected by hydrocephalus it doesn't stop there. Many elderly are effected by Normal Pressure Hydrocephalus (NPH) which can be misdiagnosed as Alzheimer's or Parkinson's. If we can start to detect and diagnose NPH early on we can help our parents and grandparents live a better quality of life by giving them proper care.
We are raising awareness and donations to help find a cure for hydrocephalus. Now thru May 15th 25% of all sales with Off Your Rocker Pottery will be donated directly to Hydrocephalus Association ( Conor's Crew team).
You can also donate directly with the link below, and remember no donation is to small (no donation is to large either!).
Chicago is hosting their annual HA Walk Saturday, August, 27th and we would love to see all of you there.
Thank you to everyone who helps us in this wonderful cause. And please, please, please share this, pass it on. Help us spread the word about hydrocephalus and raise money for this much needed research.
Off Your Rocker Pottery